Mission Statement

The LIKs movement involve the Lupus warriors and the health care providers for the anxiety free journey towards happiness. Medical treatment of diseases isimportant, but we should not forget to maintain a balance of physical health and mental health in each of us. We need to pledge that each one of Lupus patient now living a happy and healthy life need to spread the ‘happiness’ emotionally to other peer groups who are not doing well at present.

Mission Statement

The LIKs movement involve the Lupus warriors and the health care providers for the anxiety free journey towards happiness. Medical treatment of diseases isimportant, but we should not forget to maintain a balance of physical health and mental health in each of us. We need to pledge that each one of Lupus patient now living a happy and healthy life need to spread the ‘happiness’ emotionally to other peer groups who are not doing well at present.

Mission Statement

The LIKs movement involve the Lupus warriors and the health care providers for the anxiety free journey towards happiness. Medical treatment of diseases isimportant, but we should not forget to maintain a balance of physical health and mental health in each of us. We need to pledge that each one of Lupus patient now living a happy and healthy life need to spread the ‘happiness’ emotionally to other peer groups who are not doing well at present.

World Lupus Day

Organized by LIK

Lupus Initiative Kolkata Initials

Lupus Initiative is a voluntary organization formed for fostering interaction and disseminating information amongst patients with lupus, their family, and health care providers or doctors caring for such patients. It was always a long felt need for a society where this kind of interaction is possible. The motto of the society is ‘TO CREATE A COMMON PLATFORM FOR PATIENTS AND THEIR …’ If you are unable to develop them, it will be a waste of time for you to compose a research paper for sale. The use of this announcement will go a very long way in assisting you to make certain your article is coherent and coherently presented.


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Patient Corner

Lupus is about nine times as common in women as in men
What is LUPUS?

What is LUPUS?

Systemic Lupus Erythematosus (SLE) or Lupus is a multisystem autoimmune disease characterized by loss of immunological tolerance to self nuclear antigens and aberrant autoimmune B & T cell responses causing organ damage.

Managing LUPUS

Managing LUPUS

SLE is a complex and challenging disease due to its serological complexity, clinical diversity (different types of disease manifestations) and multiple comorbidities (other associated diseases). Advances in understanding the mechanism and progression (pathophysiology) of lupus have changed the therapeutic landscape of this disease. Several drugs are available and many more are in the pipeline currently. The need of the hour is to strike a balance between early diagnosis, drug efficacy, availability and cost.

What you should do :

Do’s & Don’ts

1) Do take medication as advised,

2) Do visit doctors as needed or scheduled,

3) Do follow proper exercise

4) Do not follow a healthy and emotionally happy lifestyle

5) Do learn about Lupus

6) Do spread right information and awareness

What you should not do :

Do’s & Don’ts

1) Do not smoke

2) Do not plan pregnancy without consulting doctors

3) Do not skip medicines

4) Do not skip routine visit to doctors

5) Do not believe in misconceptions and social stigmas

Misconceptions

Misconception 1: Lupus is contagious

·         Reality : It is not contagious

Misconception 2: Lupus only occurs in women and not in men

·         Reality : Occurrence in women is more frequent and men do have Lupus.

Misconception 3: Only a butterfly rash is a sign of Lupus

·         Reality : No; but it is a characteristic presentation.

Misconception 4: Lupus patients cannot get pregnant

·         Reality : Absolutely wrong.

Misconception 5: Lupus patients are lazy

·         Reality : Absolutely wrong.

Misconception 6: Sun exposure should be avoided if the patients develop rash

·         Reality : Yes.

Misconception 7: Exercise if you have Lupus

·         Reality : Yes.

Misconception 8: Lupus is uncommon

·         Reality : Lupus is not so common.

Misconception 9: Only young struggle with Lupus

·         Reality : Lupus can occur at any age.

Misconception 10: A lupus diagnosis is almost always deadly

      ·     Reality : Absolute myth.

Pregnancy with lupus

Pregnancy & Lupus

Lupus per se is not contra indication for pregnancy.

But the pregnancy should be planned and regular visits to rheumatologists and gynaecologists are essential as a part of monitoring the disease activity so that appropriate measures can be taken at the right time.

The patient must be in a state of clinical remission or minimal disease activity.

All serological markers, specially Anti RO / LA antibodies and Anti phospholipid antibodies with Lupus anti coagulant and beta -2 glycoprotien antibodies must be done.


Effect of pregnancy on Lupus

Pregnancy & Lupus


Pregnancy causes flare up of Lupus activities and this should be appropriately dealt with.

Patient with Lupus have higher risk of pre term birth increased caesarean section small for gestational age babies along with still birth. Pre-eclampsia and Ecclampsia are more common in Lupus mothers than in general.

Babies may suffer from a disease known as a neo natal Lupus syndrome. This is characterised by skin rashes and sometimes heart-blocks which poses an emergency. Anti RO / LA antibodies are supposed predisposed to this condition.

Child with lupus

Child with Lupus

  • In contrast to other autoimmune diseases, there is universally no maximum age up to when pediatric SLE rather than adult SLE is diagnosed. The disease onset is much more aggressive with a higher frequency of major organ involvement at the time of diagnosis.
  • Lupus presents in childhood in 15% – 20% of cases. SLE is rare in children although around 20% of all cases of SLE will have onset before adulthood.
  • The incidence of  cSLE  is  reported  to  be  630  per  100 000  children  per  year.
  • In cSLE, the female to male ratio is around 5 :1 in contrast to the 9 :1 ratio seen in adults.
  • Five year survival is currently between 90% and 95%.
  • Aggressive  treatment  with high dose of immunosuppressive therapy along with corticosteroids are needed.

What Our Doctors Are Saying

  • Member of the Global Advisory Committee (COVID-19), Govt. of West Bengal Dr. Sukumar Mukherjee

    Ex-Professor & Head, Department of Medicine, Calcutta Medical College
    Member of the Global Advisory Committee (COVID-19), Govt. of West Bengal
    Past President, Indian Rheumatology Association (IRA)
    Past President, Association of Physicians of India (API)

    "It was an ardent necessity for someone, in the eastern part of the world, to rise, organize and consolidate the battle against Lupus. LIK rouse to the occasion and had been the placard bearer in educating clinicians, spreading awareness and most importantly, empowering patients with Lupus."

  • Professor & Founder of the Department Clinical Immunology & Rheumatology Christian Medical College & Hospital, Vellore, India Dr Debashish Danda

    Professor & Founder of the Department
    Clinical Immunology & Rheumatology
    Christian Medical College & Hospital, Vellore, India
    Past Editor in Chief, International Journal of Rheumatic Diseases
    Past President, Indian Rheumatology Association
    President-Elect, Ex-Vice President and Treasurer, Asia Pacific League of Associations for Rheumatologists (APLAR)

    "Lupus initiative Kolkata (LIK) is marching ahead as a pioneer in rendering the helping hand to the lupus community for over a decade now. From free check-up, patient education to highly subsidised tests and dispensing of medicines, educational aid to nurture hidden talents, integration to mainstream society without stigma, LIK is fulfilling several of their social needs.

    As Medicine is becoming patient centric, LIK can act as a role model for our nation in Lupus advocacy. India needs more initiatives, like LIK, across the nation to empower our lupus patients."

What Our Patients Are Saying

  • A Lupus Warrior & member of LIK A Lupus Warrior & member of LIK One
    LIK perfectly understand the plight of the patients & their caregivers. This organisation under the leadership of Dr Alakendu Ghosh have published patient education booklet in English & regional vernacular to educate the patient regarding this disease. This organisation acts like a common platform for all Lupus activities including academic updates to caregivers and support all activities for the betterment of Lupus patients.
  • A Lupus Warrior& member of LIK A Lupus Warrior & member of LIK Two

    This society and all its members have been no less than my family and being able to come here and serve people is one of the greatest joys of my life. Thank you all once again and I hope that I continue being a part of LIK and be able to serve in the coming years too.